Your self-directed employment assistant
Every year on the last day of February since 2008, Rare Disease Day has been a global observance. The first ever observance was on February 29th, or leap day which is rare itself and happens every four years. This day is so important because it helps raise awareness among decision makers and the general public about rare diseases and how they impact folks’ lives. One in twenty people will live with a rare disease at some point in their life, with a majority of those without cures, and undiagnosed. This day of recognition is crucial in targeting policy makers, public authorities, industry representatives, researchers, health professionals, and anyone with an interest to learn. Check out the official Rare Disease Day page to learn about events worldwide, ways to get involved, news, and more!